Pilot Research on Services for Transition-Age Youth Improving Transition Outcomes in ASD using COMPASS
With funding from National Institute of Mental Health, we have started a new study to understand the issues of transition for youth with ASD, what are the barriers for achieving good outcomes, what are the key outcomes, and how should they be measured. With this information, we will adapt COMPASS and conduct two pilot randomized controlled trials. We will evaluate how well COMPASS works for achieving positive outcomes following school.
Parent Engagement in Treatment Decision Making
With funding from the University of Kentucky Intramural Research Support, we have started a new study in collaboration with the Dr. Donna Murray and clinicians of the University of Cincinnati Children's Hospital Kelly O'Leary Center for Autism Spectrum Disorders. The objective of this study is to develop and test the sensitivity, validity, and, reliability of measures designed to evaluate how well services are family-centered, if we are engaging families in the care for their child with ASD, and if desired treatment goals are being met. A range of patient-centered assessment tools exist (e.g., patient activation), but there has been little work on assessing these concepts from the family caregiver perspective. Given that the majority of parents are the primary, lifelong, decision-makers for their child with ASD, family-centered approaches hold promise for improving the quality of life of children with ASD and their families.
Longitudinal Outcomes of Adults with Autism
About 20 years ago, Nancy Dalrymple and Lisa Ruble published one of the first studies challenging the ways outcomes were measured for individuals with autism and originally surveyed more than 40 young adults. The current study is a follow-up study with these individuals with a focus on their quality of life. All are in their 40s. Information on employment status, living situation, family support, and personal responsibilities will be assessed.
School Psychologists Knowledge of Autism Spectrum Disorders
One of the goals of the National Association of School Psychologist's Autism Interest group is to identify the needs and supports of school psychologists. The Autism Services Research Group, in cooperation with the Interest group, is investigating school psychologists' knowledge and skills in identifying, evaluating, and providing interventions for students with autism spectrum disorders. More than 1000 electronic and written surveys were sent to state-sponsored school psychology organizations as well as other interested parties in order to understand these issues, and more than 400 were returned. Results are currently being analyzed.
Doctoral student, Rachel Aiello, received funding from the Organization for Autism Research to examine two popular intelligence assessments used with children with autism spectrum disorders. Please see the flyer to find out how you can participate.